Welcome to the Research 101 newsletter

About Research 101

A community engaged in research. Research 101 is a newsletter dedicated to providing a patient-centered approach to engaging with sickle cell research by providing essential information about research including: important updates and research initiatives, alerts and education for clinical trials and survey studies, research findings presented in a patient-friendly way, and community priorities.

Our goal is simple – to help individuals living with sickle cell disease and those interested in sickle cell research stay engaged with the latest sickle cell research and make informed decisions about participating to continue to move sickle cell research forward.

Community Insights 

Community insights are an integral piece of the future of sickle cell research, and Sickle Cell 101's mission. A feature of this newsletter focuses on sharing back research findings surrounding patient experiences to the sickle cell community to encourage informed decision-making about treatment options, clinical trials, and other key factors involving research participation.

What are your thoughts on clinical trials?

Why sign up for the Research 101 newsletter?

  • A digest of important sickle cell research updates
  • Alerts on current recruiting clinical trials and survey studies
  • Reporting patient priorities and experiences through research findings
  • Learn more about important research concepts and ask research related questions

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Opportunities available.